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<br>A Florida program guarantees help to families of severely mind-broken infants. Instead, parents have been pressured to decide on between parenting and a paycheck. Poor communication and bureaucratic hurdles have made the scenario worse. ProPublica is a nonprofit newsroom that investigates abuses of energy. Sign as much as receive our largest stories as quickly as they’re published. This text was produced in partnership with the Miami Herald, which is a member of the ProPublica Local Reporting Network. JACKSONVILLE, Florida - Over two decades, Choi "Julie" Nguyen bounced from one low-paying job to the subsequent: dishwasher, custodian, manicurist. As a single mom elevating two daughters and a profoundly disabled son, Nguyen may by no means hold a job for lengthy. Inevitably, the nurses Nguyen relied on to care for her son, Justin, would arrive late or not in any respect. Who would suction his mechanical airway, fill his feeding tube or flip him in mattress to forestall stress sores? Who was going to sleep on the sofa at the hospital when Justin had surgical procedure or fought life-threatening infections?<br>
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<br>Ultimately, Nguyen faced the unattainable selection of holding down a job and paying the payments - or taking care of Justin and being continuously, hopelessly broke. Florida’s Birth-Related Neurological Injury Compensation Association had agreed to help Nguyen shoulder the crushing monetary weight of raising a child whose oxygen deprivation at birth left him catastrophically [Mind Guard official site](https://gogs.kakaranet.com/rochelleabdul)-broken. Under NICA’s own guidelines, memory and focus [nootropic brain supplement](https://git.masna.ir/keithz14856809) she mustn't have had to choose between parenting and a paycheck. State lawmakers created NICA in 1988 to stem what the law’s advocates known as an exodus of obstetricians fleeing Florida and its excessive malpractice insurance coverage premiums. The legislation holds down insurance prices by shielding doctors from doubtlessly ruinous malpractice awards for delivery injuries like Justin’s, which require a lifetime of medical care. It also forecloses lawsuits from parents like Julie Nguyen. In trade, NICA agreed to compensate her claim in 1998 with $100,000 upfront and a pledge that future expenses for her son’s "medically crucial and reasonable" care can be paid. In October, [Mind Guard official site](http://gitlab.digital-work.cn/elba1591665566/elba2020/issues/15) Nguyen and her daughters, Jessica and Jennifer Pham, 32 and [buy brain health supplement](https://git.westeros.fr/kyleswo7868282/brain-booster-for-memory5524/wiki/Can+Oat+Straw+Extract+Improve+Your+Health%3F) 31 respectively, discovered - from Miami Herald reporters - that NICA provides many extra advantages than they ever knew were accessible.<br>
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<br>Though Jessica and [Mind Guard official site](https://yes.youkandoit.com/anniebruns4926/mind-guard-brain-booster2504/-/issues/5) Jennifer Pham lengthy had advised Justin’s NICA caseworkers concerning the family’s struggles, they said NICA by no means offered, nor even mentioned, the one thing that would have made the best distinction of their brother’s life: a gentle paycheck for Nguyen for caring for her little one. Now 24, Justin has lived far longer than docs predicted. It has not been an easy journey, Jennifer Pham mentioned. "It all the time felt like we have been alone on this," she stated. NICA administrators wouldn't conform to an interview but answered questions on Justin’s family by e mail after Jennifer Pham formally waived privacy protections. Administrators said they weren’t conscious Nguyen, 60, was having issues with in-dwelling nursing as a result of it was being paid for by Medicaid, a separate state insurer for [Mind Guard official site](https://git.apture.io/archiecoverdal/6120mind-guard-brain-booster/wiki/Purple-Carrot-Vs.-Green-Chef%3A-how-do-They-Compare%3F) low-income and [memory support supplement](https://goetterkomplex.org/index.php?title=Best_Drugs_For_Constipation) disabled Floridians. "NICA additionally wouldn't have been independently conscious if Ms. Nguyen was having difficulty sustaining employment," the program added.<br>
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<br>In 2004, NICA stated, [brain support supplement](https://morphomics.science/wiki/Magtein_Product_Reviews:_Is_It_Possible_To_Speed_Up_Brain_Enhancement) this system mailed a benefits handbook to all households in the program - marking the first time within the program’s historical past that benefits had been spelled out in writing for them. Nguyen, a Vietnamese immigrant with a limited command of English, couldn't read it. Although 20% of Floridians had been born in one other country, based on the Census Bureau, the NICA handbook is printed only in English. Jennifer Pham mentioned NICA absolutely knew the family was struggling with nurses, the insurers that administer Medicaid’s benefits and [Mind Guard cognitive support](https://git.futaihulian.com/maurinerupp219) Justin’s fixed hospitalizations - as reflected in greater than 8,000 pages, obtained by the Herald and ProPublica, documenting NICA’s interactions with the household. In October 2020, in the future earlier than she spoke with the Herald for [Mind Guard official site](https://git.outsidecontext.solutions/eringipps3660/6413mind-guard-product-page/wiki/Chromium-Picolinate%3A-what-are-the-Benefits%3F) the primary time, Jennifer Pham wrote to NICA pleading for assist with nursing because the coronavirus pandemic made caregiving a problem. The youthful of the sisters had made related complaints to Justin’s caseworkers up to now, together with in August 2017 when she had the staffing agency ship NICA a list of dates that nurses had missed their shifts, [Mind Guard official site](http://boiler.ttoslinux.org/luzmahmood6693/6860378/-/issues/1) emails show.<br>
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